Skip to main content
mother daughter high five

GenomeConnect is an online registry designed by the NIH-funded Clinical Genome Resource (ClinGen) for people who are interested in sharing de-identified genetic and health information to improve our understanding of the relationship between genes and human health. Investigators at Geisinger are helping to lead this initiative and would like to invite you to participate.

Registry participants can connect with other individuals and families through GenomeConnect’s participant matching feature.

Participants can also learn about other research opportunities and potentially receive updates about their genetic testing results.

GenomeConnect is open to anyone who has had genetic testing (or is the parent or guardian of someone who has had testing), regardless of test results or diagnosis.

Register for GenomeConnect

Click here to start the process of registering for GenomeConnect. You will have another opportunity to decide if you would like to participate and will not be fully enrolled in GenomeConnect until you have:

  • Completed the registration details
  • Finished the GenomeConnect Survey to consent and provide your/your child’s health history
  • Uploaded a copy of your/your child’s genetic test result(s)

Learn more

To learn more about GenomeConnect, visit the ClinGen website by clicking here